The appointment went well. Not sure if I am more confused now or before the appointment. It seems that it's just not a cut and dry case here.
First let me say that my man amazes me with his willingness to listen to the doctor and be so good. He got a big scare on his face today when we got there. First of all the appointment was at the hospital. He's not exactly fond of those places. Then after the nurse took his height and weight - she gave him a gown and said he had to take off his clothes. His eyes got as big as saucers. Ya see - any other time he is given a gown that means we are walking through the double doors. I saw it in his eyes. I quickly jumped to reassure him everything was fine and that the doctor was just looking at him.
The doctor did his exam and then we went to his office to talk. Cody's
TSH level has been off the chart. However his T3 and T4 have been
ok. Doctor said of those two the T4 was the most important and that was
ok. But the
TSH points more toward the pituitary gland. While the doctor didn't say he has hypothyroidism - he said we are more like clinical hypothyroid. Meaning = not sure if this will be a long term diagnosis. He doesn't feel the need to do an MRI at this time. He
prescribed him
Synthroid 25mg once a day and we see him back in 4 months for another blood draw and to talk. He is really hoping that once on the drug for a few years we could look to take him off around puberty to see if he levels out. A little overwhelming that this is even for a few years. He's only 4. Doctor also said that it's just not normal for a boy his age to complain of being tired all the time. However his growth is right on target. Which is good. So while we have a thyroid problem it's not not clear cut yet as to what we are dealing with. I liked the doctor. He welcomed my questions and really took the time to explain. Only thing being a pediatric doctor I felt like he could of had a more kid friendly attitude with Cody - but for now I am over looking that. I just don't feel the need (at this point) to drive to Syracuse for a second opinion.
So I need to figure out how to get him to take a pill. Maybe I'll make up a pill chart and he can put a sticker on it. The doctor doesn't recommend putting it in anything (applesauce, pudding, etc) - said he can chew it but yuck. There is no other form of it (liquid) so a pill is it. I am hoping he is better at swallowing pills than I am. Brett can pop them dry. I have no doubt he'll do it. I'm also trying to explain this to him and not finding the right words. Our other "talks" have been easy. This one you can't see.
My next concern comes to paying for this medication. Apparently this drug does not come in a generic for children. It does come in a generic for adults but it's not recommend for children by the FDA?? I guess! So for a drug plan - it's a tier 3 and for me that's $40 a month. UGH! My MIL told me to write a letter to the insurance company and plead my case so I will. (She's a nurse and fights them all day / every day) The generic - would be $11.99 for a 90 day supply. Big difference there!
Tonight as I was tucking him into bed, I told him the doctor wants him to take a pill everyday and that he would have to swallow it. He said "Mom, I'll just drink juice". I LOVE this little boy!